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19 November 2008 @ 11:42 am
Day 505 - Wednesday 19th November.  
Kyah's breathing has changed to short, sharp bursts so we are fairly certain this is it now (though we've been saying that for how long? Five weeks?!)
She hasn't had any urine output in over 48 hours so the tumour is either blocking her bladder or obstructing her kidneys.  Either way it's not good.
It feels like a lifetime since she's been in this state of sleep and we have willed her to release but now that it looks as though the end is fast approaching, I'm not ready for her to go. 
A new drug has been added to her syringe driver (cyclozine) to try and combat the constant vomiting.  As Kyah's body is not even tolerating the smallest amounts of water, it is awful to then watch her vomit on an empty stomach.

It's all happening so quickly after being stagnant for so long.  I'm very close to rambling so will end this here.

I continue to hope that Kyah's end is peaceful.
(Anonymous) on November 18th, 2008 10:50 pm (UTC)
We all do too, Shannell
Hang in there. We're all standing behind you for this bit. May she go peacefully.

Lots of love to you all.
(Anonymous) on November 18th, 2008 10:52 pm (UTC)
Praying for a peaceful end
Just want to let you know I'm thinking of you all and hoping she can slip away peacefully too, heartbroken that it has reached this stage, I was hoping for a miracle as well...its no wonder she doesn't want to leave her wonderful family... :-(
(Anonymous) on November 18th, 2008 10:53 pm (UTC)
Kyah, you beautiful, brave little angel, embark on your next journey knowing that you are one of the most-loved little girls to have graced this planet for all too short a time.

Sal + family xxx
(Anonymous) on November 18th, 2008 10:53 pm (UTC)
What a hard long road you have all had to travel. I hope she goes in peace. My heart aches for you all and what you have had to go through. Hugs for you all.
(Anonymous) on November 18th, 2008 10:54 pm (UTC)
Huge Hugs!
I wish I could give you more. I don't think you could ever be ready for it to happen! I pray that she is peace full and pain free. I'm here holding your hands, giving hugs and wishing you the strength to carry on.
Love to you and yours.
(Anonymous) on November 18th, 2008 10:55 pm (UTC)
Thinking of beautiful Kyah, and your whole family at this hard time.
(Anonymous) on November 18th, 2008 10:56 pm (UTC)
im sorry theres
nothing I can say to ease your pain. Just know im thinking about you and yours.xxx
(Anonymous) on November 18th, 2008 10:56 pm (UTC)
Hugs and lots of love to you all... and I do also hope that Kyah's end is peaceful and pain free.

Karen, Stephan and Rachel xx
(Anonymous) on November 18th, 2008 10:57 pm (UTC)
Rest now sweet baby girl. xxxxx thinking of you all
(Anonymous) on November 18th, 2008 10:57 pm (UTC)
I really am at a loss for words in fact I cry every time I read your journal as I can't fathom what you are going through. I wish your family all the strength in the world and I hope Kyah's passing is peaceful and beautiful for you.

Fly free little angel.
(Anonymous) on November 18th, 2008 10:57 pm (UTC)
love, hugs and thoughts.....
Oh shannell my love and thoughts are with you and your amazing family right now and i'm sure she will go so peacefully.

(Anonymous) on November 18th, 2008 10:58 pm (UTC)
Spread your wings sweet angel & go peacefully, it's okay to let go sweetheart xxx.

Shanell, Jase & boys - I send you all my love & my thoughts are with you all.

K, M & J
(Anonymous) on November 18th, 2008 10:58 pm (UTC)
Love to you all
and have not stopped thinking of you all every day xxx Tommi2-TMMB
suspicion bells: This Is Called Lovesuspicion_bells on November 18th, 2008 10:58 pm (UTC)
Sending hugs to you all...

Kylie & family
(Anonymous) on November 18th, 2008 10:59 pm (UTC)
My love to all of you
No words i say will be right. But all my love and thoughts are with you. Kyah you are a true gem. You shined your light on a lot of people. You changed how a lot of people think. Take care of your hearts and be kind to your self. Love and hugs Collette Lee Riley Conner and Lillyrose